Jacobs story - pre diagnosis...


This is our son Jacob and our fight to save his life from a rare brain disease called ALD or Adrenoleukodystrophy. 

What is ALD?...



What we're doing...

Medical & Physio...

Alternative medicines...

Supplements...

Environmental...

School...

The team...

Events and timeline...

Forthcoming Events...

Diary/Timeline...

Picture gallery...

Events gallery...

Treatment gallery...

General gallery...


Diary/Timeline so far...

>2009 >2010 >2011 >2012 >2013 >2014 >2015 >2016 >2017


January/Feb/March 2017

Well time flies as usual! sorry haven't updated sooner!

Jake's still going to the Chiropractors, progress has slowed a bit, as trying to strengthen his right side, which is proving to be harder than we thought! and they are now trying him on the tens machine to stimulate his muscles, he is responding really well to this. He is having an hour treatment then an hour rehab in the gym... his right side is definitely stronger than it was, but still a struggle for him to stand and keep his posture. On top of this I have been looking at a walking sling with Jake's school. The sling attaches to a hoist so takes his weight so he can possibly walk without you having to hold him up while also trying to correct his posture, feet etc... there is a pic of this under treatment gallery if you want to see how it works. Ive ordered one so we shall see if this helps!

Jake turned 17 in Feb and had a great night in the pub with is old school buds and of course the chiropractors who have now become family! (pics under general gallery!)

17! in my wildest dreams just didn't know he would make it till this age as 8 years ago we were told he had approx 2 years to live when he was 9 years old! but he has! and he is still full of beans and planning the rest of his future with God knows what! now looking at going up in an acrobatic plane doing the loop the loop! He is going through some huge frustrations at the moment though, as his mind is still totally intact, he knows if he wasn't in that wheelchair what he would be getting up to with his buds! we are trying to deal with the frustrations, breaks my heart as he is almost trapped inside his body, but try to give him the best quality of life that we can!

He is still massively into his Rock, and off to loads of concerts this year... Iron Maiden, Kings of Leon at Hyde Park, Metallica, Download festival, Dirty DC a great ACDC tribute band... and probably more to come!

So still going to school, goes to the chiropractors twice a week now... so 4 hours a week treatment and rehab exercise, plus his physio and swim sessions at school, and off to all his concerts, so we shall see what this year brings!

Copyright (c) 2016 Smile4Jacob.co.uk. All rights reserved. Website designed by Digital Image Bureau