Jacobs story - pre diagnosis...


This is our son Jacob and our fight to save his life from a rare brain disease called ALD or Adrenoleukodystrophy. 

What is ALD?...



What we're doing...

Medical & Physio...

Alternative medicines...

Supplements...

Environmental...

School...

The team...

Events and timeline...

Forthcoming Events...

Diary/Timeline...

Picture gallery...

Events gallery...

Treatment gallery...

General gallery...




Our fight to understand and combat ALD

This is our son Jacob and our fight to save his life from a rare brain disease called ALD or Adrenoleukodystrophy. 

We have had to find our own treatments/cure for this as there isn't one and this website is to spread the word on what we are doing and to keep the HOPE that someone somewhere will find something to help these poor kids fight this terrible life threatening disease.

We believe we may have and this website is to inform you all on all the different angles we are covering to hopefully find a way of stopping this.

Nobody knows what the future holds... but we wont give up trying... and through this website we can let you know what we are doing and how Jacob is responding to all the different treatments.



Jacob undergoing treatment

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